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This website has been created
to keep family friends and visitors
updated and informed on Emily's progress


First of all our family has had it rough.
We have a bad history with cancer.
My mom died when I was 7 months
pregnant with Emily of ovarian cancer.
Then September 28, 2003 my
mother in law died of cancer.

Then started the journey with Emily.
October 6, 2003
I took Emily to the hospital
because the right side of her stomach
was sticking out and was hard.
They ran lots of tests and after the
ultrasound it confirmed that there was a mass.
They scheduled her for surgery to remove the mass.
When they did the surgery they removed the
whole kidney and a 3 pound tumor.

They came and told me that my
little girl had cancer called
Wilms tumor.
It was Stage 1 Favorable histology.
I can't even explain the feeling
that came over me when I heard those Words.
That is when we met with the doctor and he told us that
she would have 18 weeks of chemotherapy.
He also told me that she had a 90% curable rate.
She went through her 18 weeks of chemo.
Her last treatment was on February 12, 2004.
Everything was going great.
All her chest x-rays turned out fine
and her tests came out good.

June 18, 2004
Emily started experiencing trouble breathing.
I called the doctor and he said if I didn't feel comfortable
with this then take her to the hospital (it was 10pm).
So once again I found myself in
the emergency room with her.
They ran all the neccessary tests
and then came and told me
that the cancer was back.
It not only came back but it had
taken over her whole right lung.
She was immediately admitted to
the hospital and scheduled for a biopsy.
On June 21 they did the biopsy.
After that surgery she was
on a ventilator for 2 weeks.
During that time they
tried to extabate 3 times.
The first time was on June 26.
They had to re-intabate right away.
The 2nd time was on June 29.
She did okay for about 36 hours
and then went into respitory distress
and became unresponsive.
I felt like I was watching my
little girl slip away from me.
They had to re-intabate
again at 6am July 1.
The last time was on July 3
and it was finally a success.

She got released from the hospital
on July 9 with the tumor still inside her.
They say that it is too risky to remove it.
Now she has had about 18 radiation treatments
and lots and lots of chemotherapy.
She goes to the doctor nearly everyday.
The tumor shrunk 50% in size,
but still not enough for me.
She has a loud weezing sound when she breaths.
She says that she has no trouble breathing.
The doctor thinks that she may have nerve damage
because of how many times they
took the tube out and put it back in.

We are hoping for the best

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Wednesday, July 4, 2012 12:31 AM CDT

Happy 4th of July!!


It has been so long since I last updated. Its been so busy here that I feel as if I just have no time to get on the computer. I went full time at work and so I am still figuring out how to juggle work and home life. Its been a challenge but I think we are getting it figured out.

Let me tell you whats been going on. Charlie promoted from the 8th grade and is now officially a freshman in high school. I can't believe it! He is growing up way to fast. Here are a couple pictures from his promotion.

Image and video hosting by TinyPic

Image and video hosting by TinyPic

Image and video hosting by TinyPic

He is so excited to be going into high school. He got accepted on a variance to the school he really wanted to go to and he got into honors classes. I am so proud of him.

Emily is now in 8th grade. I just can't believe how much they have grown up. I am so proud of her. She has missed so much school for doctors appointments and because of her lung issues and yet she has managed to stay on track and keep up with her peers. She is excited and nervous about 8th grade. She wants to do great so she can go to the same high school as Charlie. I know if she puts her mind to it she can do it.

On the health side, Emily has been doing good. We have done a lot of doctor changes over the last year and we think it has really paid off. She has been doing injections for her immune system for a year now. We just stopped them for the summer so we can see if her body is going to rebuild on its own or if these injections are something she will have to do longer or forever. We will see at the end of this month when I take her for blood work. Also her lung function has dropped quite a bit in the last 6 months, but I found out that she hasn't been taking her medicine when I am at work. So we got on her about that and the last time we went to the doctor her lung function had come up about 10rom 2 weeks prior. We also saw a new endocrinologist. He sent her for a wrist x-ray to check her bone age. She is still small for her age. Well yesterday I got the results. The x-ray shows her bone age is 13yrs old. Which means her bones have caught up to her actual age. Which is a good thing and a not so good thing. If her bones were still 2yrs behind her actual age then she would have 2 extra years to grow and would probably be between 5'2-5'4. But since her bone age has caught up to her actual age she will not have that extra 2yrs to grow and will probably top out at 4'11-4'11 1/2. She is trying to get use to the idea of being short her whole life. She gets made fun of for being short so much. I tell her to be thankful she is healthy and here. Short is not the worst thing! All other aspects of her health is good! It feels so good to be able to say that. She really is doing great.

The kids are enjoying the summer so far. Swimming, hanging out with friends, playing video games and getting ready to go to summer camp soon. Charlie leaves on July 7th and comes back July 13th. Emily leaves July 15th and comes homes July 21st. They are both super excited about going. This is the one thing they look forward to every summer. They have also been going and spending time with their dad every other weekend. He has been taking them swimming and having lots of fun with them. I have to say that life is good and we are all really happy.

I will try to keep up on updates. Thank you for continuing to check in and leave messages. We really do love hearing from everyone.

Thank you for checking in on Emily and our family. Please don't forget to sign the guestbook. We love to read your messages. Please continue to pray for all the kids fighting cancer, the ones in remission, and the families of the Precious Angels in Heaven. We love you all and God Bless!

Love and Hugs,

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http://www.active.com/donate/azhopewalk/AKornac   Emily's Butterflies of Hope team for the HopeWalk 2009
http://www.hopekids.org   Rob built this organization for cancer families in Arizona.
http://www.acor.org/ped-onc/hp/wilmspages.html   List of Wilms tumor kids.


E-mail Author: akornack@cox.net


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