In loving memory of Reid Dale Miller
Randon Speakman Miller
Reid was born on December 14, 2001 after a perfect delivery and birth. A few days after we brought him home, I had the mother's intuition that something was wrong. At that time he had a terrible rash and a poor appetite and he seemed so pale to me. I had been crying non-stop all day, but it seemed everyone was reassuring me he was fine. I finally called his doctor's office that night and the pediatricain on call wasn't very helpful, so I ended up taking him to the emergency room. There they discovered his platelet count was very low and we were sent to Vanderbilt Children's Hospital immediately. His platelet counts continued to drop and no one could figure out why. After 3 months of seeing many doctors, running every test known and spending one month intubated in ICU (due to complications from a liver biopsy), we went to the Children's Hospital Of Philadelphia (CHOP)for help and a second opinion. There he was diagnosed with complete bone marrow failure- never seen before. All his blood counts eventually dropped and his marrow was filling up with scar tissue. He went to CHOP for a bone marrow transplant. His transplant was on 4/22/02 and his 4 year old sister, Reagan, was the donor. His 8 year old sister, Riley, was the official hand holder. Reid did great during the transplant. He became a new baby who took off developmentally and had a smile that could melt a room. His new marrow worked beautifully and we were about to be discharged home when he developed a rare heart complication. At this time we still aren't sure what happened but he left us here on earth on May 24th 2002. The website provided us a means to update daily and turned out to be a demonstration of the care and love shown to us by so many. It visually demonstrated and allowed so many to see the power of prayer and to realize that no matter what happens, we always have hope.
On January 18, 2004 after much prayer and a huge leap of faith, we were given an angel here on earth, Reese Addison Miller. She has brought so much healing although never a replacement for sweet Reid.
In December of 2005 we were very suprised (but thrilled) to find out we were expecting another baby. On July 19th at 35 weeks, I went to Vanderbilt for an ultrasound. My pregnancy had been going well and all previous ultrasounds looked reassuring that everything was ok. I had noticed his movements slowing down and immediately after this ultrasound they decided to take him quickly by c-section as they could tell something was wrong with his blood flow. He was born at 1:20 in the afternoon, had to be immediately intubated and transfused. They knew at birth that he had the same condition as Reid. It was the most shocking and heart breaking news to hear. Once again, this is our journey of loving and caring for the newest angel in our family. We hope he will be able to have a bone marrow transplant soon and his biggest sister Riley is a perfect sibling match.
Sadly, that day never came. Randon had many setbacks and went home to be with his big brother and Jesus on September 23, 2006. It was later revealed that Randon indeed had Acute Myeloid Leukemia. Our hope would be to discover the faulty gene responsible for breaking our families' hearts and to know weather our precious daughters could be carriers for this never seen before genetic bone marrow/leukemic condition.
Thank you for visiting our page and reading our story. This continues to be our thoughts and expressions on our lives of becoming survivors after enduring heartbreaking loss.
Please sign our guestbook.
I'M WORKING ON A ONLINE PHOTO ALBUM AND ALWAYS ADDING NEW PICTURES Visit My Trail
Also visit our other site http://web.mac.com/predsfan
VISIT OUR PHOTO GALLERY HERE gallery.mac.com/predfan
Friday, August 10, 2012 9:41 AM CDT
August 2012 was probably one of the last things on my mind in January 1994 when I held my first child and daughter for the very first time. Although I had so many hopes and dreams for her, I never thought the day before she leaves for college would be here so quickly. Everybody told me it would, and yes, they were correct. She leaves bright and early tomorrow to begin her days at the University of Kentucky.
Read Journal History
It's been an emotional week. We sent Reagan off to her first day of high school and Reesie off to 3rd grade. I couldn't help but know that in the mix, we would have had one also going to Kindergarten as well as 5th grade. I always know where they are in the mix- and honestly not sure how I would have managed one going to college and the baby to Kindergarten-but as with everything- one day at a time.
I don't think Riley could be more ready for college. This is what we hope and pray for them- that the do well in high school, get in the college of their choice and be ready for it. So, why are we so sad about what I spent years praying for? I'm going to miss her being here everyday. For the past 18 years, my life has been consumed with her- and I know it still will be, but things will be different parenting an adult. A new transition begins here. I know longer have 3 little girls at home- just two. I think we are suppose to move our role just a bit from parent to friend...although do parents ever really stop parenting? I'm very thankful that my parents have indeed not stopped and I love that I have them still here for their guidance and wisdom.
My worries are different but prayers will continue to be constant. Our best life lessons are learned from our mistakes-yet mom's like to work hard so that their children don't make mistakes- I know I'm not going to be there everyday to help guide her away from some difficult choices- but hoping my voice will always be present in her head (big smile). Riley has been a such a blessing to us. I often tell her she was our guinea pig- or our first pancake- you know with pancakes the first one is always the hardest to get just right. Even despite my 'poor cooking' she managed to turn into the perfect pancake. I don't like to be a bragging mom, but I do want her to know that we are so proud of her and love her more than we could ever express. She is everything I prayed and hoped she'd be when I held her for the first time 18 years ago. I can't wait to see what she does with her life.
I almost forgot my password to this site. This site was created when Riley was 8- what a journey the past ten years have had us on. I'm glad that much of it is documented here and I didn't want to miss this milestone. Once again, we are grateful for the people who've shared the journey with us and been our support and help in difficult days.
I'm still a mom who thinks of my boys everyday and is forever changed by the events we endured almost 11 years ago. I know our life has gone in directions and roads that I'm often still bitter we had to go down, but everyday I'm grateful for the 5 children I was blessed to have- each one enriched my life and taught me something unique.
Perhaps now with one less child in the home, I have one less excuse not to write more!
Happy school year to everyone starting a new one and to everyone I wish you an abundance of faith, hope and love!
Patient Room: We are all home!!!
alexslemonade.com alex's lemonade fund foundation home page
locksoflove.org info on donating hair for chidren going through chemo
www.marrow.org info on becoming a bone marrow donor