Welcome to Kaitlyn's Page. Please wash your hands before entering! Kaitlyn is Fifteen years old she was diagnosed with Neuroblastoma Stage IV (At Age 3 and a half) on June the 21st 2003, N-MYC Non-Amplified, unfavourable shimada. With a tumour filling her abdomen, which had spread to her neck, knees, hips and cells in her bone marrow lining, she was placed on a tough treatment protocol (COG ANBL00P1), which consisted of 5 rounds of high dose chemo, surgery to remove as much remaining tumour as possible, two rounds of mega chemo, with Double Stem cell Transplants/rescues, followed by 10 rounds of radiation and six months of Accutane (Biotherapy). At diagnosis we were given the terrible odds of less than 20%.
Kaitlyn's current condition - Kaitlyn has had many late effect set backs. Thyroid nodule, low bone density which may have resulted in a broken hip (both were pinned) Liver lesions, Intellectual disability, Major dental issues including short roots, hearing loss to name a few. She is a happy, and calm nature and takes it all in her stride.
Kaitlyn has a big sister named Rikki-Lea (24) and four brothers Brad (22), Travis (19), Tobin (6), Lawson (3) and a baby sister Chloe (Kaitlyn named her baby sister) who watches her from heaven. She loves them all dearly and she is their princess. We are a successful step family living in a small country town in Western Australia
Many people come by this page and leave without signing the guestbook. I do appreciate those that sign and I of course understand those that don't (I visit plenty of sites and sometimes just can't find the time to sign) but if you feel you just don't know what to say or you don't want to say the wrong thing, I assure you just knowing you dropped by and are praying for Kaitlyn is so heartwarming and uplifting. So, when you do have the chance to sign, just let me know you dropped by:) You can't say the wrong thing.
Artist/Band: Austin Sherrie Lyrics for Song: Streets of Heaven Lyrics for Album: Streets of Heaven (Sherrie Austin/Paul Duncan/Al Kasha)
Hello God, it's me again. 2:00 a.m., Room 304. Visiting hours are over, time for our bedside tug of war. This sleeping child between us may not make it through the night. I'm fighting back the tears as she fights for her life. Well, it must be kind of crowded, On the streets of Heaven. So tell me: what do you need her for? Don't you know one day she'll be your little girl forever. But right now I need her so much more. She's much too young to be on her own: Barely just turned seven. So who will hold her hand when she crosses the streets of Heaven?
Tell me God, do you remember the wishes that she made, As she blew out the candles on her last birthday cake? She wants to ride a pony when she's big enough. She wants to marry her Daddy when she's all grown up.
Well, it must be kind of crowded, On the streets of Heaven. So tell me: what do you need her for? Don't you know one day she'll be your little girl forever. But right now I need her so much more. She's much too young to be on her own: Barely just turned seven. So who will hold her hand when she crosses the streets of Heaven?
Lord, don't you know she's my angel You got plenty of your own And I know you hold a place for her But she's already got a home Well I don't know if you're listenin' But praying is all that's left to do So I ask you Lord have mercy, you lost a son once too
And it must be kind of crowded, On the streets of Heaven. So tell me: what do you need her for? Don't you know one day she'll be your little girl forever. But right now I need her so much more. Lord, I know once you've made up your mind, There's no use in beggin'. So if you take her with you today, will you make sure she looks both ways, And would you hold her hand when she crosses the streets of Heaven.
The streets of Heaven.
Kaity and Grizzly
If anyone would like to link Kaitlyn's page please use this banner.
I'm in the middle of putting together a photo/music montage of some of Kaity's best photo's.
Just a little hint (dial up users), click on pause while it loads up then watch the whole clip at once.
Don't forget to watch the video Brad made for his little sister
- Childhood cancer is the number one disease killer in children.
- Neuroblastoma is the most common cancer in infancy.
- Neuroblastoma is the most common extra cranial solid tumor cancer in children.
- Every 16 hours a child with neuroblastoma dies.
- There is no known cure for neuroblastoma.
- Nearly 70% of those children first diagnosed, have disease that has already metastasized or spread to other parts of the body. When disease has spread at diagnosis and a child is over the age of 2 there is less than a 30% chance of survival.
- Childhood cancer is the leading cause of death by disease in the US and it kills more children per year than cystic fibrosis, muscular dystrophy, asthma and AIDS combined.
Saturday, November 15, 2014
Last night, Kaitlyn was able to attend her very first school ball. She literally had a ball! She's turning all teen on me.
She chose her own dress, shoes and jewellery, and a friend came and did her hair and a teeny bit of make up for her. She loved it!
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