Welcome to Jack's Webpage.
Jack was born with X-Linked Myotubular Myopathy. This is a Rare Genetic Muscle Condition. Jack has a Tracheostomy, G-tube & requires support from a ventilator. Jack spent his first 16 months in I.C.U. He came home on the 24th of December 2003 where he belongs - with his big sister & Mummy & Daddy...Within these pages there are pictures for you to see and a journal for you to catch up on whats been going on in Jack's world...
Please sign Jacks Guestbook to let us know you were here!
~ Jack's Buddies ~
Jack has been given:
Hugs in total!!
Give Jack more Hugs!
Sunday, September 18, 2005 5:52 AM CDT
Thank you for al lthe Birthday Wishes!! Mummy told me alot of people left me Birthday wishes :)
I had a great birthday! I got lots of presents and a surprise visit from my Aunty Linda & Uncles Michael and my cousins Laura & Lisa. It was sooo sweet of them travelling all that way just for me. They gave me a Wiggles keyboard, and I love it so much!
I got to eat some of my birthday cake too (most of it ended up all over my face and hands, but it was tasty.
Mummy has posted pics of my day in the photo section for all to see.
All my love,
Read Journal History
www.wch.sa.gov.au The Womens & Childrens Hospital
http://www.caringbridge.org/fl/jacobdylan/ Jacob is Jack's friend!
http://www.tracheostomy.com/trachkids/kids15/jack.htm Jacks story on Tracheostomy.com